Partnership Overview
Primary Record, the nurse-led, family-centered health record, today announced a strategic partnership with Fasten Health, a leader in patient access infrastructure and health data exchange. Together, the organizations will advance a shared mission: to empower families, caregivers, and community-based businesses to securely access, validate, and share health information across multiple providers and systems.
Why It Matters to Families
Families today manage multiple patient portals and fragmented records, for a medically complex child, an aging parent, or a household managing chronic conditions. The burden of coordination often falls disproportionately on them. Primary Record and Fasten Health believe that while access to data is necessary, access alone is not enough.
“Our healthcare system continues to put families in the position of verifying identity, repeating medical history, rebuilding medication lists, and proving over and over again, why they are involved in someone’s care,” said Jean Ross, RN, Co-Founder and CEO of Primary Record. “The 21st Century Cures Act gave families the legal right to access their electronic health records. This partnership makes that right usable. Primary Record helps families organize, understand, and confidently share information. Fasten Health ensures that access is fast, secure, and built on industry standards. Together, we’re making patient-directed interoperability a reality.”
Fasten Health Founder Jason Kulatunga has been a longstanding advocate for patient access and open standards. What began as an open-source personal health record project has since evolved into a trusted provider of patient access infrastructure. Fasten has completed the operational and procedural work required to connect to more than 20 of the 300 certified health IT systems, significantly reducing the burden on families and small community-based care organizations.
“Primary Record is solving the part of interoperability where real life happens,” said Kulatunga. “The caregivers, the advocate-led businesses, the local aging services providers, they are the ones ensuring continuity of care every day. We believe in equipping them with the ability to access and share health information in a way that is compliant, secure, and controlled by the patient. That is where meaningful coordination begins.”
Making Access Work in the Real World
At this stage, the partnership focuses on Fasten’s patient access API network, rather than the exchange happening through the Trusted Exchange Framework and Common Agreement™. Both organizations are committed to serving and scaling responsibly, ensuring that any expansion into national exchange frameworks is informed by real-world evidence of impact and need.
What Families Can Do With This Integration
Through this partnership, families will be able to:
- Search and access medical records from Fasten’s connected network to over 52,000+ healthcare providers
- Validate and maintain an accurate, longitudinal medication and condition list, giving families and care teams a single source of truth they can rely on
- Leverage Primary Record’s AI Chat Assistant to make complex medical information easier to understand, recall past care events, and quickly locate what matters most during appointments and care transitions
- Generate and share a real-time health summary or medication list via QR code, ensuring care teams have accurate, up-to-date information at the point of care.
- Control view and edit permissions to share only what is relevant with family members
- Accept invitations from partner businesses focused on helping advocate and coordinate care
“This is about making the 21st Century Cures Act real in people’s lives,” added Ross. “We are committed to putting health information in the hands of families in a way that is secure, understandable, and actionable. And we chose Fasten Health because they share that responsibility and have done the hard work to make access work in the real world.”
This collaboration reflects a growing movement toward patient-directed interoperability, a model that not only meets policy requirements but also acknowledges and supports the ongoing work families shoulder every day as they navigate an increasingly complex healthcare system.
“Technology can help. Standards matter. But at the end of the day, it’s relationships and trust that move healthcare forward,” added Ross. “Our partnership with Fasten Health is grounded in that truth.”
About the Organizations
Primary Record
Primary Record is a nurse-led digital health platform built for families, caregivers, and community-based care professionals. Frequently recommended by doctors and nurses, the platform consolidates health information from multiple patient portals, providers, and care settings into a single, shared record controlled by the individual or their authorized representative. Sign up for Primary Record at primaryrecord.app.
Fasten Health
Fasten Health builds patient-centered access infrastructure for health data exchange, enabling secure retrieval of medical records across health systems through standardized, privacy-forward patient access APIs. Learn more at fastenhealth.com.
