The Centers for Medicare & Medicaid Services (CMS) have approved over 400 organizations as testing grounds for a new model of dementia care and family caregiver support called Guiding an Improved Dementia Experience (GUIDE) Model. As of July 1, 2024, these established businesses offer comprehensive care management and support programs for individuals diagnosed with dementia and their caregivers. Below is an updated tool to help families find participating GUIDE Model programs across the United States, including their legal business name, program name (if applicable), address, city, and website links. You can learn more about the GUIDE Model here.
Find GUIDE Model dementia care support near you — or virtually, anywhere in the U.S.
The GUIDE Model connects people living with dementia and their family caregivers to a dedicated care navigator, 24/7 support line, and respite services, at no extra cost under Medicare. Pick your state below to see programs with a local office and programs offering virtual/telehealth coverage into your state.
What to ask when you call
- Are you currently accepting new patients, and is there a waitlist?
- Do you serve people covered by Original Medicare, and is there any out-of-pocket cost for GUIDE services?
- Is care delivered in person, by phone/video, or both — and how often?
- What respite care or caregiver training is included?
- Who do we call after hours or in a crisis?
How This GUIDE Model Directory Was Built
This tool was built from CMS’s official GUIDE Model Participant List, using Claude to clean, organize, and structure the raw spreadsheet into a searchable format. It sorts programs by state, distinguishing in-person offices from virtual/telehealth coverage, and consolidating organizations with multiple office locations into single entries. We reviewed it for accuracy before publishing, but with 450+ listings pulled from a government spreadsheet, errors are possible: a phone number could be outdated, a state might be miscategorized, or a listing might be missing entirely.
This also reflects CMS’s list at a point in time. CMS updates that list periodically as organizations leave the model or adjust the states they serve, so treat this as a strong starting point rather than a live feed. CMS’s own mapping tool is the most current source straight from CMS.
Primary Record built this resource for Daughterhood to make CMS’s list easier for families to use, as they can use Primary Record to bring together key information to help them qualify.
How to Use This Tool to Find a Program
Search by state above to find a program’s phone number, website, or email. This includes both in-person offices and virtual/telehealth options that reach your state. Because CMS selected all GUIDE participants through a single application window in 2024 and closed enrollment for the model’s eight-year run, the challenge now isn’t tracking new entrants. It’s raising awareness of this program to families and clinicians so they know about it, then helping them find which of the existing 450+ organizations actually reaches you.
Please verify before you rely on this, especially for time-sensitive care decisions. Confirm any program’s details directly by phone or on their website. If a link is broken, something looks wrong, or you know of a GUIDE participant we’re missing, let us know, and we’ll fix it.
For general questions about the GUIDE Model, visit the CMS GUIDE Model Overview or call 1-800-MEDICARE. If you’re in need of a community that understands the challenges you are facing as a daughter or caregiver, make sure to check out Daughterhood Circles.
For more on how the model works, see our Understanding Medicare’s GUIDE Model.
