Blog

NSSC awarded $229,337 Bristol Myers Squibb grant for Crisis to Care pilot, shown with NSSC, Primary Record and BMS logos

Primary Record Partners with National Shattering Silence Coalition (NSSC) on Bristol Myers Squibb–Funded Crisis to Care Pilot

Primary Record is the technology partner for Crisis to Care, a 12-month pilot from the National Shattering Silence Coalition (NSSC) funded by Bristol Myers Squibb. The pilot pairs 50 families of adults with severe mental illness with lived-experience Family Navigators and Primary Record's secure health app. Together, they help families organize and share vital health information when a crisis hits.
Map of U.S. state HIEs and national QHIN networks, including eHealth Exchange, CommonWell, Epic Nexus, and regional health information exchanges

A State’s Guide to RHTP Interoperability: Building on Your HIE to See the Whole Patient

RHTP asks states to report community-level outcomes. This guide maps the interoperability pathways available beyond the state HIE, from QHINs to patient-directed access, plus five questions to ask as you fund integrations.

Discover Dementia GUIDE Model Participants in Your State

The GUIDE Model represents a significant advancement in dementia care, offering structured support and respite services for caregivers and comprehensive care management for patients. Find an easy to scan list of established organizations to see if there is a program in your state!
Diagram of bidirectional health data exchange between HealthCall and Primary Record for Mobile Integrated Health

Primary Record and HealthCall Announce Mobile Integrated Health Interoperability Partnership

Community paramedics often arrive on scene with little to no patient history due to data locked away in disconnected hospital systems. A new partnership between Primary Record and HealthCall closes that gap, giving Mobile Integrated Health teams bidirectional, patient-authorized access to a patient's full health story right when it matters most.

From Mistrust to Understanding: How AI Is Helping Immigrant Families Understand Their Doctor and Their Health

A public health student's summer project connected Eritrean and Ethiopian family members to their health records through AI. She showed how understanding personal health information, in their own language, can change how confidently someone talks to their doctor.

The Medical Binder: Why We Keep Asking Families to Solve a Problem the Healthcare System Created

Type "medical binder caregiver" into any search engine and you'll find hundreds of guides, downloadable PDFs, and printable templates telling families to get organized. But why, in 2026, are we still asking caregivers to solve a problem the healthcare system created? Primary Record and the National Shattering Silence Coalition are here to change that.
HL7 International "Setting the World on FHIR" 2026 case study featuring Primary Record, a patient-directed health record platform built on FHIR standards

Rural Health Has a Last-Mile Data Problem. FHIR Is Part of the Answer.

Health systems have made real progress on interoperability. But outside clinical walls, rural care teams, community paramedics, and family caregivers are still stitching records together by hand. Primary Record co-founder Jean Ross, RN, on the last-mile data problem in care coordination, and what FHIR can and can't yet solve.
Two people sorting medications into a weekly pill organizer surrounded by multiple prescription bottles and discharge paperwork on a table — a community health worker helping a patient with medication reconciliation after hospital discharge.

Why Do We Build Medical Care Pathways But Not Social Ones?

We've spent decades building clinical pathways for heart failure: the drugs, the testing intervals, the escalation triggers. But the pathway stops at the hospital door. The community paramedic, the area agency on aging, the community health worker, they're doing the work that keeps patients out of the ER, and none of them are in the same system, reliably funded, or connected to each other. It's time to build the care pathway that starts when the patient goes home.
SOC 2 Type II certified badge showing independent security compliance for protecting health data in digital health apps

There Is No Official “HIPAA Compliance Logo.” Here’s What to Look for Instead.

Many families think they need to look for a HIPAA compliance logo when choosing a health app, but no official logo actually exists. Learn what certifications really matter and how to choose tools that truly protect your health information.