From Caregiver to Research Contributor: Making Your Voice Count

Couple on couch with a clincial researcher holding a clipboard to register them.

Despite the value they bring, many caregivers are unaware of how to engage with research opportunities. Richard shared that his own journey began when his doctor suggested a study. “Most people don’t even know these things exist or how to find them,” he explained. While financial compensation for research involvement is often nominal, the rewards extend far beyond monetary value. For Richard, participating in research keeps him informed about cutting-edge innovations and allows him to advocate for better care practices.

How to Correct Medical Errors in Your Family’s Medical Record: A Step-by-Step Guide

A mom on the phone in a green shirt calling to get her child's medical record corrected

Mistakes in medical records are more common than we might think, and while some errors are harmless, others can have serious long-term consequences. A rushed diagnosis or an auto-populated note in an electronic health record (EHR) can follow a patient for years, affecting future care, insurance claims, and even legal matters. For families navigating complex or rare medical journeys, these errors can be devastating.

Navigating the Transition to Adult Healthcare as a College Student

A three picture series to help depict transition from pediatric to adulthood

Switching from a pediatrician to an adult primary care doctor is a big deal, but many of us don’t think about it until it’s too late. Pediatricians often stop seeing patients when they reach a certain age, and finding a new doctor can take a long time. If you’re not prepared, you might end up like I did—without a doctor when you need one.

Discover Dementia GUIDE Model Participants in Your State

The GUIDE Model represents a significant advancement in dementia care, offering structured support and respite services for caregivers and comprehensive care management for patients. Find an easy to scan list of established organizations to see if there is a program in your state!

Understanding Medicare’s GUIDE Model: A New Hope for Dementia Care

Caring for a loved one with dementia can be overwhelming. The Centers for Medicare & Medicaid Services (CMS) recently introduced an innovative program to support those diagnosed with dementia and their caregivers. Let’s dive into the GUIDE Model, a Medicare-reimbursed initiative, and explore what it offers, how you can qualify, and what to expect.