Why Primary Record is Focused on Organizing Health Information
Patient portals are improving each day, but there are many reasons they will always fall short in serving individuals and their families over their lifetime.
The Whole Care Network
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Description
The Whole Care Network is a robust network of individuals, teams, and organizations within the care economy. They bring personal care stories and reliable resources for those living with a care role.
Their mission is twofold:
- To contribute to Whole Care Network media (podcasts, books, videos, educational content, etc.) so authentic and trusted information reaches families facing tough care challenges, thus making care better.
- To collaborate to maximize the breadth of valuable perspectives from our diverse group will ensure our work and organizations can better address tough care challenges.
Their Story
Christopher MacLellan started The Whole Care Network based on his experience as a working family caregiver and the passion he gained through advocacy and collaboration before, during, and after caregiving. While being a family caregiver, Chris tapped into his ten years of experience as the director of an information and referral service hotline.
He realized it was challenging to find trusted information and resources to sustain a healthy and productive lifestyle at home and at work.
Thus, he created The Whole Care Network. For years, the heart of The Whole Care Network was bringing valuable information to family caregivers with shared stories through podcasting. The focus was easy-to-consume media for family caregivers everywhere, organized within 4 Pillars of Care.
Featured Guidance
What Most Forget When Moving an Aging Parent
Adult children understand the American healthcare system. However, many have not encountered the disconnect older parents face with multiple providers, medications, and home services.
What Access to Medical Records Is Like for Families
More and more families are seeking ways to share their health information within their family. Given medical records are becoming more available online via patient portals, read how to get or give access.
When to Trust Mobile Health Applications
When an application is not a “HIPAA-covered entity or business associate,” the laws around privacy and security fall under a different set of federal laws. When building Primary Record, the FTC Mobile Health App Interactive Tool provided guidelines to ensure every family’s medical Homebase had in place the needed privacy and security measures.
The Importance of Family and Community in Healthcare: Personal Stories and Insights
When it comes to healthcare, personal health records (PHR) have been hailed as a way to take charge of your health, reduce the cost of care, and improve the quality of care received. However, my time as a volunteer, nurse, and mom in my community has made me realize how short-sighted PHR systems have been.
Primary Record Helps Reduce Unnecessary Stress for the Sandwich Generation
Who is the Sandwich Generation? In 1981, two social workers, Dorothy Miller & Elaine Brody, identified a growing phenomenon they called “the sandwich generation.” Their research identified the growing stress of middle-aged adults who supported aging parents, children, and grandchildren…
The Six Reasons Why Primary Record Chose to Serve Family First & Not Businesses
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How Electronic Access to Health Information Impacts Caregiving in Burmese Communities
Background During the 2023 spring semester of my Community Health degree at Indiana University School of Public Health, I had an opportunity to intern with Primary Record to gain an understanding of the exchange of health information to support a…
Empowering Family Caregivers: Simplifying Health Data Management with Primary Record
Recent regulatory shifts have created federal laws for patients and their families to access more detailed releases of their medical data electronically. Lack of knowledge regarding personal health data has contributed to the loss of continuity of care, inconsistent care…
Seven Ways Families are Defined: Unpacking Primary Record’s Family-Centered Approach
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Streamline Family Health Information Access with Patient Portals and Primary Record: A How to Guide
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1upHealth Conversation: Engaging Patients and Families in Health Data
As we enter a new era of patient access to health information, the healthcare industry continues to face challenges in effectively engaging patients and their families with health data. Despite advancements in technology, many still need to be convinced about…